Yummy tea and cake was had by all as BFF Leanne came round. I could taste food again which has been a problem for over a week now, so happy to have my taste back that I think I have eaten my entire body weight in cake! It was lovely to see Leanne as I should have seen her at the weekend but as you all know I ‘hit the wall’ and I didn’t go the the planned function. So we didn’t stick to the family curfew time last night as I was excited to hear all your views on the ‘Name of the Log Cabin game’ and so I started my favourite game of ‘wack a comment’ early.
Now lots of you voted for Wendy’s House’ but sadly due to the Trades Description Act of 1985, section 3, paragraph 6 it can’t be named Wendy’s House as it’s not a house by definition. So that’s the trades description legal action covered off, plus I didn’t like it LOL. You will have to read until the end of this post to find out the new name.
At midnight Steve goes to bed and I search the net for soft furnishing and start to plan the interior decor which I enjoyed doing. At 2 am I took the increased dose of Amitriptyline and at 2.30 am I head off to bed. Amitriptyline is actually a sleeping tablet but it is known to tackle nerve pain too. I was told by Marina yesterday that it may take a few days to work. Sleep was again not easy due to the pain and at 4.45 am I am awake again and in pain. I can’t take any pain killers until 6 am so I hit the oral morphine not only for the pain but the hope that I may fall asleep again but no that didn’t work either.
At 5 am before sunrise I set up my bed in the chemo gazebo and lie hoping for the pain to ease and sleep but no that didn’t work either so it’s now still dark, 5.30 am and I’m starting my days ramblings. At 5.45 I take my 6 am pain killers and I hope to sleep soon. I not giving up on the new drug schedule as I have to give it time to work.
So back to some bits I missed from yesterday’s post
Drugs – now when I spoke to Marina about what I was taking for pain I shared my frustration of always taking tablets and one drug is taken to combat another. For example as I was taking cocodamol which slows the body right down I then start to bloat and I have to take laxatives. She agrees for me to stop the cocodamol and the new drug regime is now alternating every 3 hours between 2 x 500mg paracetamol and 1 x 600mg Ibuprofen with 2 x10 mg of Amitriptyline at night. Oral morphine is used throughout the day and night if need for break through pain, hence me hitting the morphine so early today.
Frankie update – great news from her (Rita your prayers are being answered) and this is the email I received 2 days ago.
So pleased to hear from you and to know they’re getting your new chemo sorted. I do think of you so often and hope that the pain you were suffering is now under control. Sorry to hear about your lovely hair – you’re such a stunning. Lady so,time for some flamboyant headgear when the times right for you. Time to make a statement and you can carry it off.
I had a CT scan and my first review which was very positive and reassuring. They’re not sure now whether the metastasis on the lung are indeed lesions or just scar tissue as not much has changed there, but the liver is showing no increase in number and the ones there appear to be shrinking. The bowel is more difficult to see, but the radiologist suggests that the bowel wall is thickening again which is a good sign and there is no further deterioration. I came away feeling very positive and ready to fight a further 4 sessions. I have found chemo 4 the most difficult and even this chemo free week I still feel so tired and lethargic. Everything seems such an effort, but then I’ve been in and out of the chemo wards with scans, interviews, PICC lines and flush apps. This Wednesday I’m back at Wycombe for a blood sample and flush then Friday chemo 5.
The PICC line as you said took far longer than I had anticipated, but it’s fine. Just a pain having to go to the hospital every Wednesday for a flush through, but then if it makes my life less stressful every Friday Chemo day then it’s worth it. Last time they took half an hour to get the line In and I’m still bruised!!
Had a great Birthday day with lunch with friends and a family lunch on Sunday with Barns, Lara and the boys. Always love their cuddles – makes my heart sing and know all I’m going through is so they can spend time and be naughty boys with Granny!! I’ve booked my train ticket for the 29th September to Cornwall so I see Jess and Tally for a week. I’m so excited to see them both settled into their new home and life.
Take care my friend, keep positive and never loose your wonderful sense of humour – it’s a necessity in order to make our brains laugh and chase our demons away.
Thank you to the anonymous donation of £20 yesterday whoever you are I appreciate it and thanks to Sheere Lee another member of the BHS family for your donation too. We have now raised £2605 so far towards supporting a fantastic charity.
Talking of charity don’t forget the awareness day on Saturday 26th September in the Eden Centre, High Wycombe from 9 am – 6 pm . Marina from the Ian Rennie team has said she will come and help. Mary from the High Wycombe BHS store is also going to come for a few hours on her day off. Sex Kitten may come, oh and Cath you can bring the kids with you and they can join in the fun by wearing the funny bum shorts. Anyone else who wishes to join us for whatever time you can spare is greatly appreciated.
Thank you to those of you who have sent in your calendar photos it’s really coming together and is Steve’s little project. Please send them through to him as soon as you can so that this can be completed and we can start to take pre orders in time for Christmas. what a fabulous gift this will make for your loved ones and it raises money for Beating Bowel Cancer too. Steve has a marketing plan for it so please get the photos in to him, thank you.
The petition is going well and it is now being signed by people who I don’t know which means that your friends are signing and sharing it, excellent. If you haven’t signed it yet go to http://tinyurl.com/oz3pq7a and then please share it with your friends to sign. We are only asking for equality in screening for bowel cancer from the age of 50 like they do currently in Scotland.
So enthused with the log cabin coming mom and I head off this morning to buy soft furnishings. We went to Dunelm in Reading as they have daisy style bedding. All disabled parking was taken but to be fair to them they did have wheelchairs available at the front door. This is good as I took mine with me but mine has to be pushed, theirs you can wheel yourself. I’m now completely broke and brought everything with a daisy on it. Bed linen, throws, jugs, biscuit barrel, cups, love hearts and much much more. I’m so excited now and my dining room is now full of all the soft furnishings for it. Here is a picture of the bedding from the range, we of course have matching curtains too 🙂 nest building is so much fun, or is that just a girl thing?
Last night when BFF Leanne was round for dinner we discussed if I was going to be able to attend the BHS Autumn Winter Conference which is on 30th September this year. So due to my bad night of sleep I sent Amanda (HR) an email at around 6 am saying that I would love to come but I would need so much help that if it was too difficult it didn’t matter. I wouldn’t go and I wouldn’t be offended. I have again been so supported by by BHS family it just amazes me. They are letting me stay the night before in a disabled room so that I can be okay for the actual day. As hubby will have to drive me they are also letting him stay with me the Tuesday night so that he can help me get settled in. Thank you so much Amanda and James at HO who are helping me to be part of the company that I am so proud to work for. You both made my day, that and the daisy soft furnishings 🙂
And finally the name of the log cabin will be……………… ‘Daisy Den’
Thanks for all your votes on the name and some of the wonderful other suggestions which made me laugh were, She Shed and Poo Corner LOL